So yesterday was the last session of Speech and Language Therapy for Amzah and I’m absolutely thrilled. As some of you may know from reading my previous posts such as: My son has Speech and Language Delay
Amzah has a developmental delay that causes difficulties in day-to-day living, it literally became the most exhausting issue of my life and truth be told I didn’t blog about it because it honestly irritated me that I couldn’t document major changes.
Back in spring 2017 he started with a new Speech and Language Therapist as his last one went awol (and sorry to say especially regarding my fellow NHS workers but she was terrible at her job and paid no attention to the real issue at hand which was his understanding, speech and attention)
His new therapist Deb took me seriously, understanding my desperation to get him on track and had a proper discussion with me about where he was and what I could expect from the sessions. It was exactly what should have been done in the beginning, and she was 100% committed to working with him and would often email me after every session with worksheets and additional information. Unfortunately she went back home to Australia and after months of commitment to Amzah she referred us on to be taken over by another SALT. So today we done a full communication and understanding assessment with this new Therapist and my little champ passed, she said we don’t need to come anymore and I couldn’t be happier! Finally I get a break! Finally there’s progression!
“I took Amzah to speech and Language Therapy in my lunch break at work. We woke up at 5am to start his worksheets, and I never ever asked for help” We were a team and we worked well together!
These past 2 years since Amzah started on the road of Diagnosis’s, pediatricians and Speech and Language have been so exhausting and draining. I often wondered how I was going to get through another day, another session, another stupid unsuccessful diagnosis and today….for the first time ever I felt free. I saw progress….
I feel extremely proud of myself as out of all those months of Therapy I managed to juggle a ridiculous schedule week after week single-handedly. Looking back on it, I don’t know how I did it, especially with my business getting started in the mix nonetheless It just feels amazing to know all my hard work has paid off.
Mostly, I’m super proud of Amzah for all his hard work, it was far from easy but the progress he’s made is phenomenal and shows how dedicated he is to making life just that little bit easier for himself and others around him.
“It must be so lonely not being able to fully communicate and comprehend the world around you… It must be terribly exhausting to only manage to express your feelings through anger and shame……”
Unfortunately we are not out of the woods just yet he will be re-referred back to the pediatricians as it’s finally clear to see that his delay is not due to his Speech and Language but may be attributed to more Autism/ADHD but truth be told……..I’m so bloody done with the label, my son is one boss ass kid, albeit he has difficulties but he’s freaking amazing and has proved that children with additional needs can do well if given the right support and dedication not just from family but the healthcare professionals working with them.
With all that said I am one very happy mama right now and my boy “The Amazing Amzah” rocks!
Until Next Time!
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I’d also love to know if any other parents have experienced something similar!